Hospital day 6

After a reasonable night, Gideon's catheter was allowed to come out this morning. And last night the drip stopped working but decided [...]

Hospital day 5

Gideon, after an intense evening/night, is stable again and today's ultrasound looked much better. So the many [...]

Hospital day 4

13.00Van morning the urologist did another ultrasound. The course is going as expected and prognosis looks good, but [...]

Hospital day 3

09.00hGideon had a good night. Less pain, fewer wires and no monitor. That therefore means no beeps and [...]

Gideon in hospital

Gideon is unfortunately currently staying in the WKZ... He was in Zeist on Wednesday with Rosalie and family to a play paradise for [...].

Swimming certificate!

Gideon got his swimming certificate this weekend! When we started swimming lessons last summer, we had not dared to hope [...]

Lung fund campaign

Gideon becomes the face of a new CHD campaign at the lung fund. This has come to [...] in a very special way.

Samos on holiday!

We spent 2 weeks on holiday together. How much we have been looking forward to a time when we could have a carefree [...]

Gideon 5 years!

Where is the time... Gideon celebrated his 5th birthday last week. And what a birthday! We made it [...]

No hospital for next 3 years!!!

High time for an update to let you know how we are doing!Last period was another rollercoaster [...].

Site and update

Unfortunately, no new site for a while yet. The hosting I'm on is in the process of moving to a new software where the old [...]

Grateful!

No news is... Gideon is still doing incredibly well. In fact, he has been doing better for a few days than before the [...]

Diaphragm surgery 4 - report

EN EN Below is a report of Gideon's (4th) diaphragm surgery(Details last modified on 1-3-2017)Reason for surgery2 [...]

(No more hospital) day 10

EN EN There we are. Got home yesterday from a bizarre adventure, a week after surgery. What a delight!We [...]

Hospital day 9

EN 5.20pmWe are home! 5.20pmWe are home! 11.10amWe are allowed to go home! After the CT scan, we can basically [...]

Hospital day 8

20.30hWe have great news: If things continue like this, we will be allowed to go home tomorrow or the day after!!Medically, there is nothing more to [...]

Hospital day 7

EN EN 11:00amWe had another reasonable night. Early in the night there was a lot of pain again, [...]

Hospital day 6

EN EN 8.30pmIt's been a good day. Not too many "strangers" in the room wanting all sorts of things from Gideon. As a result [...]

Hospital day 5

EN EN 8.15pmGideon is asleep. Marieke is with him, and I am now in the RMH. We have a beautiful day behind [...]

Hospital day 4

EN EN 16.00hWhere's another day of lots of impressions and visits for our little guy. Examination here, thorax photo there, lots of [...]

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